Monday, August 27, 2012

So Called "Right to Life"

        I learned from one of the autism blogs I follow, Juniper Hill Farms, the heart-breaking story of Paul Corby. 
        Paul Corby is a young man of 23 years from Pennsylvania, U.S.A., who suffers from a very rare congenital heart disorder, left ventricular non-compaction (LVN). This disorder primarily affects the muscles of the heart, most commonly the left ventricle, which unnaturally appears spongy. This defect renders the heart ineffective in performing its function of circulating blood thus the danger for life-threatening complications. Paul survived three strokes and has been maintained on 19 sorts of medications daily. This being the case, a heart transplant would be the best treatment option.

      Paul's mother Karen, posted on Change.org a petition urging the U.S. Senate to help her son get a heart transplant. What is the need for a mother to go through so much, even seeking the help of the country's legislators for her son to have that life-saving heart transplant? It is painful to know, but Paul was being denied placement on the national heart transplant list despite the severity of his condition. There were many reasons cited why he was denied  having a heart transplant. One of them was that Paul has Autism. 
 Link to Karen Corby's Petition

      Finances or unavailable facilities are common reasons why someone is denied therapeutic measures needed for a certain medical condition. Denying a person of something that would improve and prolong his life based on his intellectual or mental capacity is another thing.
      Persons with autism may be different compared to ordinary persons. Their lives are full of complexities. Autism in itself is confounding. However different, complex, or confounding they may be. This doesn't mean that persons with autism have the right to life at a lesser extent.
      A doctor may doubt about the likelihood a person with autism will thrive well after a major surgery. Considering the behavioral issues, the ability of an autistic person to perceive aftercare and drug interactions. However, it is noteworthy that a person with autism despite his limited abilities knows his medical condition, the suffering he has to go through brought about by that ailment, and his willingness to undergo a procedure knowing how beneficial and life saving that would be. Life has not always been easy for someone under the spectrum. The persons surrounding them help and guide them to get by. Their families and support groups; heaven-sent, persons with a good heart who would always be willing to help in any way they can is something to reckon with in relation to medical or surgical aftercare.
      There were a lot of persons with autism in varying ages who have gone through major surgical procedures. Organ transplants were no exception. They managed to survive and adjust to their new life after the operation. Every medical procedure, especially major surgeries (ie. Organ transplant, neurosurgery) carry definite risks. Even medications taken by an individual have their own side effects. Despite the dangers and unwanted side effects, doctors prescribe medications or decide on performing a procedure when benefits outweigh the risks.
       As for Paul Corby being denied placement on a heart transplant list due to a number of reasons, and having autism is one of them. I hope the person who decided on this would have a compassionate heart to look into Paul's will to live longer and fuller. Instead, may he look into these weaknesses as a motivation to do good and let the wonders of science improve and change the course of Paul's life.

       This post is dedicated to Paul Corby with wishes for a good, healthy and happy life. To his mother Karen,  your strength and courage as you stand by Paul is admirable.


Image Credits:
   Human Heart Dream Designs

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